Hurricane, UT 1st Annual Walk and Roll for a Cure

Syringomyelia, often referred to as SM, is a chronic disorder involving the spinal cord. The condition occurs when cerebrospinal fluid (normally found outside of the spinal cord and brain) enters the interior of the spinal cord, forming a cavity known as a syrinx.

This syrinx often expands and elongates over time, destroying the center of the spinal cord. As the nerve fibers inside the spinal cord are damaged, a wide variety of symptoms can occur, depending upon the size and location of the syrinx.

Symptoms develop slowly over time, but can come on suddenly after a fall or minor trauma. Sensation may be affected first. Some common symptoms include:

Loss of sensitivity to hot and cold
Numbness and tingling
Bowel and bladder function may be affected
Muscle weakness
Paralysis (in severe cases, quadriplegia)
Scoliosis may be the only symptom in children. Often people with scoliosis undergo spinal MR imaging because of an atypical left-sided thoracic curve.

Many individuals suffer from chronic pain and some will develop neuropathic pain syndromes. This type of pain is difficult to treat. A large percentage of people have headaches which can be severe.

There are few options for treatment and as of current there isn’t a cure. 8.4 people per 100,000 are diagnosed, the rest are either undiagnosed or underdiagnosed. Please join with me to spread awareness and raise funds for research to find a cure.

1st Annual Walk and Roll for a Cure 5K

Date: Saturday, April 12
Time: Registration 9:00 am Walk starts at 11:00 am
Place: Hurricane High School track
345 West Tiger Blvd
Hurricane, Utah

For more information visit our event website at or contact event coordinator Heather Leitner at 435-272-2375 or [email protected]

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