ST. GEORGE — A support group for caregivers of those suffering from frontotemporal dementia – a rare form of dementia that affects a patient’s behavior and language – will be held offered to Southern Utah residents. The free meeting will be held at the St. George Library, 88 W. 100 South, March 12 from 12:30-1:30 p.m.
Memory Matters, a nonprofit organization working to improve wellness for individuals with dementia and their caregivers, has partnered with the Association for Frontotemporal Degeneration to offer the support group.
The support group will be facilitated by Bonnie Shephard, who left her career to support her husband when he was diagnosed with FTD. She is currently a board member and recording secretary for the Association for Frontotemporal Degeneration and previously served on the state’s Alzheimer’s Task Force.
Frontotemporal dementia – also known as frontotemporal lobar degeneration, Picks disease or simply FTD – is distinct from other forms of dementia.
The patient’s memory is usually relatively preserved, but the disease leads to a progressive degradation in speech and behavior.
“Often, it happens in people younger than 65,” LuAnn Lundquist, Memory Matters founder and director, said of the disease.
Unlike more common forms of dementia, FTD has been diagnosed in people as young as 21, though onset is most common in people in their 50s or 60s.
In addition to genetic predisposition to the disease, other triggers for FTD include traumatic brain injury or stroke.
Patients with FTD will begin to exhibit marked differences in behavior and speech near the onset of the disease, symptoms that usually manifest later and are less pronounced in the progression of the disease in more common forms of dementia.
“They lose their language, so when they talk, what comes out isn’t words,” Lundquist said. “They think it’s words when they’re forming it, but the tongue doesn’t bring out a word.”
Some patients eventually stop talking completely.
“We don’t see it a lot,” Lundquist said of the disease. “I would say only about five percent of the people we see have it.”
While there are currently no treatments to slow or stop the progression of the disease, FTD research has expanded in recent years.
The meeting is intended as a supportive resource for caregivers of those suffering from FTD, but those who have questions about the disease or suspect a family member may be showing signs of it may also attend.
The support group is offered on a quarterly basis for Southern Utah residents.
- What: Frontotemporal dementia support group.
- When: Monday, March 12, from 12:30-1:30 p.m.
- Where: St. George Library, located at 88 W. 100 South, St. George.
- Cost: Free.
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